I was going through some of my old journals and found this one from March, 1998. Mikaylah was a year old.
It's titled: Miraculous Mikaylah
Mikaylah is her name. She is beautiful. She is my little girl. Mikaylah was born March 17, 1997. My pregnancy was like any other and by March 17th I was ready to have my little baby in my arms. My doctor did not show up and the nurse delivered Mikaylah. There was great confusion and Mikaylah was taken to the nursery. What a night. My first thoughts were what did I do wrong? And my second thought was of my son Christopher. How I had prepared him for a healthy perfect brother or sister. Telling him he could come to the hospital and then we would bring our little baby home. My next thought was Spina Bifida- What exactly is that? I had heard of it about 2 months earlier at a baby store. A couple had come in with a beautiful baby girl who was born with Spina Bifida and also had a shunt. I remember thinking at the time as people were asking whether or not this baby would play sports, "They love their baby even if it doesn't." Those words came back to me that night.
That first night I remember feeling shocked, helpless, and as if I was on the outside looking in. Our ministers wife came to minister God to me and our family. What a blessing it was to have someone pray with me through this unknowing time. Family members began to come and the support of my cousin Janice and dear friend Tera was a God send. Finally the time came to see Mikaylah. Her whole back was covered and I could see nothing. Nothing could have prepared me for what was under that bandage. I prayed God take care of my little baby GIRL. I realized at that time that God not I is in TOTAL control of all things. When Mikaylah was taken that night from the hospital and taken to UCSF it felt as if I was abandoning my baby. I wanted so desperately to comfort her, to hold her, to feed her, and just kiss all her hurts away.
That night was a night of wondering... what is Spina Bifida, what is the outcome, will my baby die before I get there? Realizing that God owned Mikaylah and He had a plan I was right where God wanted me TOTALLY dependant on Him.
Once again here I am. I can keep asking... why? how could this happen? or I can once again depend on God and become totally dependant on Him. He had her best interest at heart 14 years ago and he had her best interest at heart 8 months ago today. He had mercy on her and He decided to heal her and give her life abundant and to bring her home with Him.

Just reading this took me back to that night too. I remember how sad we all were for those same reasons...what is Spina Bifida & how long will we have her? What will she have to go through, pain wise? Will there be lots of surgeries & shunts & what is a shunt? So many questions. I didn't know what was going to happen but, whatever it was it was in God's hands. I knew from the very beginning we would love her & do whatever we had to do no matter what. She did everything the Dr said she would never be able to do & did it well! We always wanted the best for her. We had so many great times with her, she went everywhere we did...despite everything the nurses & Dr told us. They said you will get tired of carrying her around & it will be easier to leave her home. Well that never happened she was always a part of our family, did the things we did. When she got sick in February 2011 she kind of went downhill but she fought but never came totally back. She was tired all the time. The Dr told her she would have back surgery in 2012 which would be very draining on her. I think God knew...no I know He knew what he was doing when He called her home on the morning of December 21,2011 he took her out of the pain she was to face, he felt she had fought a good fight & now she will be rewarded! I don't believe for a moment He put that pain on her...He took her out of it so she would suffer no more. We are the ones hurting & want her here with us because we miss & love her...but I believe she loved you her whole life but when God called her she went & never looked back.. We trusted Him when she was born & we have to trust Him now to take care of her. I love you, mom
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